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Out of the Shadow of Leprosy, by Claire Manes, Marcia Gaudet
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In 1924 when thirty-two-year-old Edmond Landry kissed his family good-bye and left for the leprosarium in Carville, Louisiana, leprosy, now referred to as Hansen's Disease, stigmatized and disfigured but did not kill. Those with leprosy were incarcerated in the federal hospital and isolated from family and community. Phones were unavailable, transportation was precarious, and fear was rampant. Edmond entered the hospital (as did his four other siblings), but he did not surrender to his fate. He fought with his pen and his limited energy to stay connected to his family and to improve living conditions for himself and other patients.
Claire Manes, Edmond's granddaughter, lived much of her life gripped by the silence surrounding her grandfather. When his letters were discovered, she became inspired to tell his story through her scholarship and his writing. Out of the Shadow of Leprosy: The Carville Letters and Stories of the Landry Family presents her grandfather's letters and her own studies of narrative and Carville during much of the twentieth century. The book becomes a testament to Edmond's determination to maintain autonomy and dignity in the land of the living dead. Letters and stories of the other four siblings further enhance the picture of life in Carville from 1919 to 1977.- Sales Rank: #1289903 in eBooks
- Published on: 2013-03-26
- Released on: 2013-03-26
- Format: Kindle eBook
Review
“In eloquent prose, Claire Manes tells the touching and tragic story of her grandfather, Edmund, and his four siblings, who contracted one of the most feared diseases in history: leprosy. Manes draws upon her grandfather's letters, discovered years after his death, to paint a portrait of the man, who lived as one of the thousands of outcasts at the leprosy hospital in Carville, La. Driven to learn about the grandfather she never knew, Manes becomes a witness to his life―and the lives of many others who spent their days confined to the leprosy hospital in Carville, La. She weaves their stories with grace and style. It is not to be missed.”
―Sally Squires, filmmaker, Triumph at Carville: A Tale of Leprosy in America (PBS)
“Throughout the world, one of the greatest challenges facing the Hansen’s disease/leprosy community is ensuring that individuals whose lives have been affected by this disease are afforded their rightful place in the history of their families, their countries and the world. By sharing the letters that her family kept from their relatives who had been taken from them together with powerful family photographs, Claire Manes provides us with an important, very personal perspective on the social response to those who had leprosy in the days when people were forcibly relocated to places like Carville. Even more important, she shows how the bonds of family ultimately prove stronger than any disease or society’s reaction to it.”
―Anwei Skinsnes Law, international coordinator, IDEA (International Association for Integration, Dignity, and Economic Advancement)
“In the process of describing these ‘half-lives’ of the quarantined leprosy patients of days past to others, it appears that Claire herself has found an intimacy with those great-aunts and uncles and grandfather who lived the public secret of a leprosy diagnosis, achieving a release of sorts, for her whole family –not only the members who were quarantined by a diagnosis of a feared and criminalized disease. She has offered us a way to reach into a particular time and place and feel with them, as they live an unexpected life in the shadow of leprosy.”
―Elizabeth Schexnyder, curator, National Hansen’s Disease Museum
From the Inside Flap
A firsthand account of the trauma and impact on one family facing leprosy
About the Author
Claire Manes, Lafayette, Louisiana, is retired from Remington College, where she taught English and speech for fourteen years. Her work has appeared in Louisiana History, Journal of American Folklore, and Louisiana Folklore Miscellany.
Marcia Gaudet, Duson, Louisiana, is professor emerita in English at University of Louisiana at Lafayette and author of Carville: Remembering Leprosy in America (University Press of Mississippi).
Most helpful customer reviews
7 of 7 people found the following review helpful.
HIGHLY RECOMMENDED!
By abbysinger
Finally, the story is out about a family who endured the loss of a husband, father and grandfather who had the misfortune to contract Hansen's Disease. This was a deep, dark family secret even to those of us who knew them well.
Ms. Manes does a thorough job of sharing with her readers a thought provoking and heartbreaking true story that needed to be told. It is well written and will hold your attention. Once I started it, I could not put it down.
4 of 4 people found the following review helpful.
Interesting history of Carville as seen through letters home
By Jane
I am a resident of Louisiana, old enough to remember when those leprosariums patients were sent to Carville so I was interested in the history through these very personal letters exchanged by this family. Their pain of separation can be felt in many of them. Clare Manes did a good job of providing a look at the past.
3 of 3 people found the following review helpful.
Interesting book about leprosy/Hansen's Disease
By booklover
I bought this book because I was told it was about members of my mother's family. I remember Marie and Albert from when I was a child, but did not know what had become of them. I also visited their abandoned home once. I found the book fascinating. It was some what repetitive when it came to the letters. They could have been edited to prevent this. But a pretty good look at the life within the institution, and about the disease itself. I don't know if I'd have been as interested if my family were not involved. As a nurse, I wanted to know more about the treatment. I spoke to the author by phone, as she is a cousin whom I have never met. It was interesting to hear her views about the book.
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